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Genetic Alliance

Address: 4301 Connecticut Avenue NW Suite 404
Phone: 202-966-5557
Languages Spoken: english

Genetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1000 conditions.  The organization works to transform leadership in the genetics community to build capacity in advocacy organizations and to educate policy makers by leveraging the voices of individuals and families.  Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.

With a 20-year history as a 501(c) (3) not-for-profit organization, Genetic Alliance is dedicated to improving the quality of life for everyone living with genetic conditions.  We are committed to capacity building in all communities.  The technical assistance we provide to advocacy organizations results in measurable growth: increased funding for research, access to services, and support for emerging technologies.